Document 0002
 DOCN  M9460002
 TI    Challenges of caring for a hemophiliac patient with HIV nephropathy.
 DT    9404
 AU    Wolfrum J
 SO    ANNA J. 1994 Feb;21(1):82-3. Unique Identifier : AIDSLINE MED/94190117
 AB    Throughout his life, J.G. sought control over his hemophilia, often
       putting himself at risk by playing sports and trying to live as normal a
       life as possible. He actively directed his life and decided what risks
       were worth taking and in the end, he directed his death. Outcome goals
       originally formulated in J.G.'s plan of care were met. Active bleeding
       was controlled. The vascular access was free of complications and in the
       end was used as the only way to administered medications to provide
       comfort. Was the decision to dialyze worth it? The answer varies from
       hostility at the effort and valuable resources used, to apathy, to
       collective support for complying with the patient's informed decision.
       As nurses we actively participated in a plan of care to keep him alive,
       and altered our plan when the decision was made to withdraw treatment. A
       sense of sadness remains, but also a sense of closure without guilt,
       frustration, or remorse for having had the chance to participate. It was
       worth it for J.G. and his wife.
 DE    AIDS-Associated Nephropathy/ETIOLOGY/*NURSING  *Blood Transfusion  Case
       Report  Hemodialysis  Hemophilia/*THERAPY  Human  Male  Middle Age
       *Patient Care Planning  JOURNAL ARTICLE

       SOURCE: National Library of Medicine.  NOTICE: This material may be
       protected by Copyright Law (Title 17, U.S.Code).