SPECIFIC RECOMMENDATIONS FOR POST-POLIOS DO'S & DON'TS, GENERAL THERAPIES AND THINGS TO AVOID What follows is a general, practical guide for post-polios to use and that summarizes in outline form the current thinking about post-polio. It is not a substitute for individual medical evaluation or therapy. It will be most valuable if it stimulates you to seek further and more specific information. --Take time to rest: nap if possible during the day, work fewer hours, take longer vacations. __If you are experiencing increasing muscle weakness, exercise only under the supervision of a knowledgeable physician. --Make sure you get adequate nutrition. --Be alert to (not obsessed with) changes in your body, and heed your body's signals. --Take note of any new symptoms plus clear or gradual changes. --Get enough exercise to prevent disuse atrophy, but not enough to produce overuse damage. --Learn how to pace yourself. --Prevent the secondary complications of weakiness, particularly falls; this might entail the use of crutches or a cane, or a wheelchair for extended travel, or braces or other adaptive equipment. --Avoid weight gain; too much weight only aggravates stress on joints and muscles. --Consider possible adaptatins to your life style; even minor adjustments--changes in hobbies or modes of transportation--can help. --Do not assume that every physician fully understands post-polio problems; educate yourself, and never hesitate to ask questions. --Minimize alcholol use,, particularly at bedtime; alcholol inhibits swallowing, interfers with nutrition, and causes falls and other accidents. --Try to maintain a positive attitude toward your health; accept change, adapt, and never equate your self-worth with physical disabilities. --Post-polios with respiratory insufficiency should take common colds very seriously. --Get enough bulk-producing fiber in your diet. Avoid stimulant laxatives. --Medical evaluation of post-polios should include a complete history, physical exam, and appropriate lab studies. --Muscle strength evaluation should be done by a registered physical therapist or someone familiar with neuromuscular diseases. Repeat muscle testing is now advised every year, even if there is no obvious change in strength. --The current recommendation is that all post-polios have a complete medical evaluation covering the three major areas affected by polio: neuromuscular, circulatory, and respiratory. --Problems with extremities or joint function may require special consultation--from physiatrists, orthopedists and/or neurologists--familiar with skeletal deformities and muscle weakness. --Experienced physical or occupational therapists can help determine functional losses and how best to adapt. --Muscle stretching and joint range-of-motion exercies are important where there is muscle weakness. --Swimming is the best cardiovascular endurance and general conditioning exercise. Water temperature should be warm (at least 90 degrees). --Discontinue any exercise that causes pain, weakness, or muscle fatigue, including walking. --Muscles weakened by polio respond poorly to vigorous strengthening programs. Such programs--weight lifting, for example--often aggravate the condition. --Post-polios should know their own strength limits or endurance and avoid going repeatedly to that limit. --Post-polios should avoid narcotics for any reason; aspirin is preferred as an analgesic for muscle or joint pain. --Occupational therapists can help assess upper extremity functin, daily activities, and need for assistive devices--all to help achieve the highest level of independence possible. --Rest is the best known treatment for aching muscles. Moist heat, anti-inflammatory medication, and avoiding exertion are also helpful. --Physical therapy--heat, massage, jointmobilization, and stretching exercies--can help chronic lower back pain. --Change of gait pattern, such as using crutches, may be needed to prevent recurrence of lower back pain. --Post-polios MUST learn to conserve energy. --Post-polios, even though once rehabilitate, must be re-evaluated and learn new techniques to replace those that no longer work. --Body positioning during sleep is important for post-polios with severe weakness, postural or joint deformities. --Post-polios with marginal respiratory reserve at sea level should be prepared to use respiratory aid when travelling to elevations above 3,000 feet. --Post-polios with respiratory insufficiency are advised to receive the influenza vaccinatin accordint to U.S.Public Health Service guidelines and recommendations. ***************************** Compiled by the Post-Polio League for Information and Outreach (P-POLIO) Sources: Handbook on the Late Effects of Poliomyelitis, 1984, ed by Gini Laurie, -------- -- -- ----- ------- -- ------------- Frederick M. Maynard, M>D>, D. Armin Fischer, M.D., Judy Raymond; published by Gazette International Networking Institute, St.Louis,