From WOMEN'S DAY MAGAZINE, February 20, 1996. Page 48 Your Health: Ache All Over? Suspect Fibromyalgia by Marie Savard, M.D. Don't feel bad if you don't know what fibromyalgia is. This painful muscle and joint affliction is neither new nor rare, but I can't think of a medical problem that is more ignored and misunderstood. Some doctors don't even believe it exists. That's hard for me to believe when I see women who have suffered for months, even years, with fatigue, sleep disturbances and stiff, painful muscles all over their bodies. Fibromyalgia is thought to affect 3 to 5 million Americans, at least 80 percent of them women. Unfortunately we don't know the cause and cannot offer any way to prevent or cure it. But new treatments are making things better. DO YOU HAVE IT? Most women with fibromyalgia ache all over, often particularly in the mornings. It's also common to feel unusually tired, yet sleep poorly. Some sufferers also have irritable bowel syndrome, migraine headaches or Raynaud's syndrome (loss of circulation in the cold, causing painful white fingertips). People who have had Lyme disease may develop fibromyalgia, but most experts doubt the connection. If you think you may have fibromyalgia, you _must_ see a doctor who knows it well. If she's not familiar with it, get a referral to a rheumatologist (a doctor who treats muscle, joint and connective-tissue problems) or a fibromyalgia specialist. Make an appointment for a thorough physical exam, including a complete medical history. Include your psychologic history, since emotional trauma, abuse or other stress factors can trigger fibromyalgia, and mention any episodes of depression. Your doctor should examine you to rule out other diseases such as arthritis. If Lyme disease is suspected, get a blood test before you take antibiotics, even if you have had Lyme disease in the past. Blood tests can also exclude other conditions such as thyroid disorder or connective-tissue problems. The most important part of your exam is having the doctor feel for tender points in the muscles and around the joints. If you have fibromyalgia, you will feel widespread pain when the doctor presses you around the neck, shoulders, upper arms, chest, lower back, hips, knees and elbows. You do not need X-rays to confirm a diagnosis. FEELING BETTER MEDICATIONS. Here's some encouragement. Many doctors have started prescribing very low doses of three antidepressants, nortriiptyline (Pamelor, Aventyl), amitriptyline (Elavil, Amitril) and fluoxetine (Prozac). At these levels, far below what is used to treat depression, the three drugs relieve the sleep disturbances, fatigue and muscle aches of fibromyalgia. A combination of amitriptyline and fluoxetine may work even better. Some women see dramatic changes within days. These drugs are not typically habit-forming but may cause constipation and dry mouth. We aren't sure how well this new treatment will work over the long haul. Another antidepressant, cyclobenzaprine (Flexeril), also at low doses, works for some people as a muscle relaxant. Over-the-counter painkillers such as aspirin, acetaminophen (Tylenol), ibuprofen (Advil) and naproxen (Aleve) offer temporary relief, but they don't solve the long-term problem and you may build up a tolerance. Acupuncture is another option that has helped some of my patients. A local injected anesthetic (a trigger-point injection) will numb a very painful area, but this should _not_ become a habit. And I don't recommend prescription tranquilizers or narcotic painkillers such as codeine--they are addicting and don't work over the long term. EXERCISE. Regular, mild movement can help improve circulation to sore tissues. Try low-impact exercises, such as walking or swimming in a heated pool. If the pain gets worse, stop the activity and talk to your doctor. Stretching exercises also can be helpful. Work with a physical therapist (insurance may pay for it) to set up a safe and effective program. STRESS RELIEF. You may improve if you can find ways to relax, such as biofeedback, yoga or meditation. Some women benefit from talking to a psychotherapist about their stress. _Any_ changes you can make to reduce stress and fatigue can help, though that's not always easy. The biggest stress may be having a condition that many people don't understand or don't take seriously because you don't _look_ sick. Tell your primary-care doctor that you have fibromyalgia and make sure she works closely with any specialists who treat you. If treatments aren't working or if new symptoms develop, tell your doctors. Your fibromyalgia probably won't disappear, but you can learn to live with it. --Dr. Savard is director of the Center for Women's Health at Medical College of Pennsylvania Hospital. Additional Information (page 148 in the same magazine) The Fibromyalgia Network (P.O. Box 31750, Tucson, AZ 85751; 800-853-2929), a self-help organization, publishes a newsletter covering the latest medical research and sharing advice. Subscribers can get a list of support groups in the U.S. and Canada and the names of doctors in their area who treat fibromyalgia. The Arthritis Foundation (800-283-7800) offers a free brochure on the condition.