INTRODUCTION Twenty years ago, a White House press release heralded the enactment of a new amendment to the Social Security Act--the Supplemental Security Income (SSI) program. It was proclaimed as "landmark legislation" for the aged, blind, and disabled which would end many inequities and "provides dramatic and heart-warming evidence that America is the country that cares--and translates that humanitarian care into a better life for those who need, and deserve, the support of their fellow citizens." With one bold stroke, Franklin Delano Roosevelt in 1935 brought into existence the Social Security system, a system which was made up of ten programs. It has proved to be the greatest system ever enacted for the prevention of poverty. Today, there is general agreement that the SSI program has been a great step forward for the Social Security system. It has kept many people of all ages, including older women and minorities, from destitution. In 1992, the program will serve over 5.5 million people--up from 3.2 million in January 1974, the first month for which SSI benefits were paid. The program has provided a means for independent living for many people with disabilities. People with disabilities now comprise the largest segment of the beneficiary population. It has enabled many children with disabilities and their families to receive needed income and medical assistance. Over 500,000 children with disabilities will receive benefits in 1992. It also has rendered an outstanding service to needy older persons. Some of the principal needs confronting the blind have been met. SSI is the only national effort to date where the Federal Government has undertaken to assure a minimum income to a significant portion of those in need in America. However, millions of people who are aged, blind, or disabled--and who are truly needy--are denied access to SSI benefits because of inadequate outreach and rules and procedures which deny them access to the program. Today the disability community is confronted with a backlog of approximately 762,000 cases and an estimated 1.4 million backlog by the end of 1993 because of inadequate funding and staffing. On average, a person currently filing a claim for the first time waits up to four months to receive benefits. If the backlog doubles, it can be assumed that the average delay will increase materially. Today--nearly 20 years after the first payments were made--SSI still fails to lift its constituency out of poverty. The Federal floor which it established is still below the poverty line. In 1992, the poverty income guideline for an individual is $6,810. But the income which SSI assures qualified individuals is only $5,064. While forty-three States and the District of Columbia voluntarily supplement this Federal standard, in all but two States the total amount available to beneficiaries living independently is still below the poverty line. Despite its shortcomings, recipients and advocates around the country have directly and indirectly testified to the importance of the program. One advocate, an attorney, stated, "The SSI program is a great program. It is the best way currently in use to provide some basic financial and medical relief to a great number of disabled individuals. Unfortunately, they are poor and many times illiterate, but this should be looked on as an opportunity for this country to serve, rather than oppress its people." Similarly, an advocate for the mentally ill stated, "...I believe the SSI program is marvelous. It serves millions of needy persons and considering the size and scope of the program, does it relatively efficiently. However, in my contacts both professionally and personally with SSI recipients I see a number of inequities." Like this person, and many others who wrote in or came to public meetings, the experts find no flaw with the underlying basic concepts upon which SSI is based. However, the poorest of the poor among people who are aged, blind, or disabled are being short-changed. The public comments and the results of the experts' analysis reflect three key themes: o First, this is a solid, exceptionally important program which, despite the intent of those who created it, has never completely lived up to its potential; o Second, after almost twenty years, some of the rules of the program should be modified to reflect the realities of being poor and aged, blind or disabled in America in the 1990's and to bring about better coordination with other social security programs; and o Third, no program, no matter how exceptional, can meet its goals if it is perpetually understaffed, creating bureaucratic nightmares for those intended to benefit from the program and morale problems for agency staff. The body of this report addresses more than 50 program improvements which would grant SSI access to truly needy persons who are aged, blind, or disabled and which would improve the quality of care received by people on the rolls. A majority of experts endorse these improvements which cover diverse issues, including: matters relating to the payment of benefits and the adequacy of the benefits; the criteria for eligibility (the needs tests--income and resources--and tests for categorical eligibility--the definitions of age and disability); agency staffing; linkages to the Medicaid and food stamps programs; and the need for periodic reviews of the program. Also included is relevant background information about the current program and specific issues the experts believe need to be addressed, as well as the individual points of view of all experts, including those whose perspective differs from that of the majority on a given issue. While individual experts differ on how far they want to go on changes, and how fast to go, a majority of the experts concluded that there are four top priorities, each of equal importance, which should be addressed first. In no particular order, they are: o Increase SSA staffing; o Increase the federal benefit rates; o Stop counting, as income, in-kind support and maintenance; and o Increase the resources limits while streamlining the resources exclusions. When Commissioner King asked the experts to work on the SSI Modernization Project, she asked them to explore in depth the implementation of the objectives that Congress had in mind when it approved the program in 1972. They were asked to provide a blueprint for improving the program to meet the needs of low income elderly, blind and disabled people in the 1990's. This is the experts' blueprint for action extending over a period of 5 years. The action should not be delayed. The poorest of the poor among the aged, blind, and disabled are suffering today. The mark of a truly great nation is that it faces the needs of those who are poor; it does not shrug its shoulders but goes to work on meeting those needs today. The next chapter tells about the objectives of the SSI program, overall characteristics of the people it serves, and the experts' work. It also tells about the four highest priorities of a majority of experts. The remaining chapters deal with all of the options supported by the experts.