HHHHHH HHHHHH HHHHHH H H HHHHHH H H HHHHHH H H H HH H H H H H H HHHHH HHHHHH HHHHH H H H HHHH H H H HHHHHH H H H H HHH H H H H H HHHHHH H HHHHHH H HH HHHHHH HHHHH HHHHHH Chronic Fatigue Syndrome Electronic Newsletter --------------------------------------------------------------------- No. 2 August 23, 1992 Washington DC --------------------------------------------------------------------- OCTOBER CONFERENCE CONTENTS >>>1. Summary of program of October conference. This issue is devoted entirely to summarizing the scheduled program for the international CFS/ME clinical and research conferences to be held October 2, 3 and 4 in Albany, New York, USA (about 130 miles / 210 km north of New York City). -=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=- The following information was summarized from the official conference brochure. Only the conference sponsors and their designated travel agent are responsible for the information provided, and for any arrangements regarding the conferences. To request a complete program listing, leave your mailing name and address at the following telephone message machine: USA 800-442-3437 International: 1-704-365-9755 See fee and registration information after the program summary which follows. ------------------------------------------------------------------- International CFIDS/ME CLINICAL Conference Friday and Saturday, October 2 and 3, 1992 International CFIDS/ME RESEARCH Conference Saturday and Sunday, October 3 and 4, 1992 Albany Marriott Albany, New York USA conferences sponsored by: Albany Medical College's Department of Family Practice American Association for CFS CFIDS Association, Inc. Capital District CFIDS Support Group National CFS Advisory Council National Institutes of Health New York State Department of Health The program lists 39 speakers for the conferences. Also, it states that the Albany Medical College (accredited by ACCME) has designated these conferences as continuing medical education for various credit hours for the AMA and the AAFP. PROGRAM SUMMARY PRE-CONFERENCE WORKSHOP ----------------------- Thursday, October 1 7:30-9:30 pm The Washington Connection / Advocacy: working the system CLINICAL Conference ------------------- DAY I -- Friday, October 2 8:00- 9:00 am Registration (desk open to 8:00 pm) 9:30- 9:45 Welcome & Introductory Remarks 9:45-10:15 Historical Perspective & World view: Clinical & Epidemiological Features What does research tell us about CFIDS/ME? An overview of key studies and relevance to the clinical picture 10:15-10:45 Evidence for a link with infectious agents: viruses & retroviruses 10:45-11:15 The immune system: friend and foe 11:15-11:45 Epidemiology worldwide: How common is CFS? Who gets it? 11:45-12:00 pm Moderated questions and answers 12:00- 1:00 Simultaneous sessions / Luncheon 1) - Primary practice issues - Conceptions & misconceptions about CFS - The role of the primary practitioner in treating CFIDS 2) Patient workshop: applying for and retaining disability 3) Alternative therapies: acupuncture and other approaches -- how effective? Issues in diagnosis -- part I 1:00- 1:30 A unifying model for clinical & lab findings 1:30- 2:00 An approach to diagnosis -- adults 2:00- 2:30 An approach to diagnosis -- children & adolescents 2:30- 3:00 Immunologic lab testing: potential relevance for diagnosis in CFIDS - T & B lymphocyte testing - polymerase chain reaction testing 3:15- 3:45 Fibromyalgia and CFS: overlapping or exclusive diagnoses? 3:45- 4:15 Depression vs. CFIDS: the controversy 4:30- 6:00 Simultaneous sessions 1) Psychological assessments and treatment of CFIDS patients 2) Issues for persons with CFIDS - ask the experts: physician panel - Ampligen update - Americans With Disabilities Act: new resources and options - Advocacy: Washington progress report 3) Towards an objective functional assessment of disability in CFIDS: documenting disability vs. disease 6:30 Buffet dinner Issues in diagnosis -- part II 7:00- 9:15 Toward a theory of limbic encephalopathy The making and unmaking of memory Sleep disorders: does CFS have a unique footprint? Neurolmaging: the relevance of SPECT Scans in diagnosing CFS 9:15- 9:30 Moderated questions & answers DAY II -- Saturday, October 3 8:00- 8:30 am Registration (desk open to 4:00 pm) Treating CFIDS patients: current and forthcoming options 8:15- 8:45 Neuropharmacologic therapies 8:45- 9:15 Neuropsychologic therapies: cognitive & behavioral approaches 9:15- 9:45 Metabolic & nutritional therapies (including magnesium) 9:45-10:15 Immunologic therapies: Ampligen, Kutapressin, gamma globulin, transfer factor 10:15-11:00 Primary care forum -- "Ask the experts" RESEARCH Conference ------------------- DAY I -- Saturday, October 3 8:00-11:00 am Registration (desk open to 4:00 pm) 11:00 Welcome 11:15-12:30 pm Historical perspective 12:30- 2:00 Lunch break / poster session Session I 2:00- 3:30 Epidemiological research 3:30- 5:00 Clinical research 5:00- 7:00 break and poster sessions 7:00 Banquet and keynote address - Introduction - Keynote address: public health policy and CFS DAY II -- Sunday, October 4 8:00 am Late registration 8:00- 9:00 coffee and donuts in the poster area Session II 9:00-10:30 Multidisciplinary studies 10:30-12:00 pm Public health policy 12:00- 1:30 Lunch break and poster sessions Session III: Basic Sciences 1:30- 3:00 Virology 3:00- 4:30 Immunology 4:30- 5:00 Closing remarks and a critical review of the field ------------------------------------------- Fees (US funds) BOTH Conferences SINGLE Conference Physician (CME credits and $250 $150 Friday dinner included) Other Professional $200 $125 (Friday dinner included) All other participants $90 $65 Dinner, Friday $15 $15 Dinner, Saturday $25 $25 (not included in registration fee) Conference registration can NOT be paid with a credit card. Hotel rates (excluding taxes) in US funds Marriott: $89 per room/per night, single or double Red Roof: $55 per room/per night, single or double One night's fee is required to secure reservations. Make all checks payable to: CERTIFIED TRAVEL ASSOCIATES 21 Aviation Road Albany, NY 12205 USA telephone: 1-518-437-0691 or (USA) 800-237-1517 FAX: 1-518-437-0699 TELEX: 281497 AYLT UR ===================================================================== CFS-NEWS is an independent newsletter edited by Roger Burns in Wash- ington D.C. and is distributed on Internet and Fidonet. Suggestions and contributions of news may be sent via Internet to CFS-NEWS @LIST.NIH.GOV, or via Fidonet to Roger Burns at 1:109/432, or post a message to the CFS echo. Copyright (c) 1992 by Roger Burns. Permission is granted to excerpt this document if the source (CFS-NEWS) is cited. Permission is also granted to reproduce the entirety of this document unaltered. Note that Fido and Fidonet are registered marks of Tom Jennings and Fido Software. ===================================================================== INTERNET users are encouraged to obtain the RESOURCE file and other CFS files at the NIH file server. To obtain the resource file send Internet e-mail to the address SERVER@CU.NIH.GOV with the subject line GET FTP CFS.RESOURCE (the message text is ignored). Or log in via anonymous ftp to cu.nih.gov or 128.134.64.7 with password=guest, directory=CFS, filename=RESOURCE. Distribution of CFS-NEWS on the Internet is sponsored by the NIH Computing Utility; however, this independent newsletter does not represent the views of the National Institutes of Health. To subscribe, send the command SUB CFS-NEWS to the address LISTSERV@NIHLIST.BITNET or @LIST.NIH.GOV CFS-NEWS is also posted to the CFS echo on Fidonet.