Document 0970
 DOCN  M94A0970
 TI    Caring for PWA: the family care givers' experience.
 DT    9412
 AU    Katabira E; Kaleeba N; Sebbanja P; Okurut N; Kaseje M; Anderson S; Tembo
       G; Marum E; AIDS Support Organization, Kampala, Uganda.
 SO    Int Conf AIDS. 1994 Aug 7-12;10(2):239 (abstract no. PB0969). Unique
       Identifier : AIDSLINE ICA10/94371605
 AB    INTRODUCTION: The AIDS Support Organization (TASO), an indigenous
       Ugandan NGO, is conducting a participatory evaluation of its care
       activities. Among the key actors in the evaluation are family members
       who look after bedridden patients. OBJECTIVES: To identify who provides
       family care, their source of support, knowledge and the difficulties
       encountered. METHODS: As part of an evaluation exercise of TASO
       services, family care givers looking after bedridden PWA were
       interviewed within their homes using a standard questionnaire.
       Convenience sampling was used to select the families from the seven TASO
       centers. Data were collected from caregivers of 232 patients. RESULTS:
       The majority of caregivers are women (86% female; 14% male). TASO was
       the most frequently cited source of care related information (81.5%) and
       emotional support (82.8%); neighbors were the next most frequently
       mentioned source of information (31.9%) and emotional support (41.7%).
       Whereas medicines/treatment were considered to be the most important
       type of care (28.1%), emotional support was mentioned as the most
       difficult patient's need to cope with (31.3%). When challenged as to who
       should take the main care of a PWA, 53.6% said that it should be the
       mother of the client or a spouse (10.7%). More results to follow.
       CONCLUSION: The burden of home care lies heavily on women, either as
       mothers or spouses. Neighbors are an important source of information and
       support; programs teaching family caregivers in home care of PWA should
       also train neighbors in basic AIDS information and home care.
 DE    Acquired Immunodeficiency Syndrome/*NURSING  Caregivers/*PSYCHOLOGY
       *Family  Female  Home Nursing  Human  Male  Marriage  Mothers  Social
       Support  MEETING ABSTRACT

       SOURCE: National Library of Medicine.  NOTICE: This material may be
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