Document 0625
 DOCN  M95A0625
 TI    What do families know about blood product exposure during pediatric
       cardiac surgery and the risk of HIV infection? American Pediatric
       Society 104th annual meeting and Society for Pediatric Research 63rd
       annual meeting; 1994 May 2-5; Seattle.
 DT    9510
 AU    McCrindle BW; King SM; Newman A; Murphy T; Corey M; Poon AO; Freedom RM;
       Dept. of Peds., Hospital for Sick Children, Toronto, Canada.
 SO    Pediatr AIDS HIV Infect. 1994 Oct;5(5):317 (unnumbered abstract). Unique
       Identifier : AIDSLINE AIDS/95330419
 AB    STUDY AIM: To determine parental and patient knowledge regarding blood
       product exposure and HIV infection risk, and acceptance of a risk
       notification program. SUBJECTS AND METHODS: Telephone interviews were
       obtained from either parents or patients (if over age 16 years) who had
       been contacted by their responsible physicians as part of a notification
       program involving 1793 children who underwent open heart surgery at the
       Hosp. for Sick Children between 1979 and November, 1985, prior to HIV
       screening of blood products in Canada (mean exposure--16 +/- 12
       unscreened units). RESULTS: Interviews were completed for 40% of the
       eligible cohort and included 171 parents and 54 patients. More parents
       (77%) than patients (37%; p < 0.0001) were aware that donated blood had
       been used at surgery. Although the majority of both parents (86%) and
       patients (94%; p = NS) knew that HIV infection could occur through a
       blood transfusion, only 34% of parents and 26% (p = NS) of patients were
       aware of the risk of HIV infection from their cardiac surgery. Only 69%
       of patients versus 91% (p < 0.0001) of parents were aware of the media
       coverage at the onset of the notification program, and fewer patients
       (20%) than parents (58%; p < 0.0007) had telephoned the hospital to
       request information. Both patients (98%) and parents (96%; p = NS) felt
       the stress of notification and testing was justified, and 94% of
       patients and 93% (p = NS) of parents felt all at-risk transfusion
       recipients should be notified. Patients were more likely to indicate
       that the family doctor should be responsible for notification, vs. the
       hospital for parents. CONCLUSIONS: Significant numbers of both parents
       and especially patients were unaware of the HIV risk associated with
       cardiac surgery, and patients were less likely to be aware of the media
       coverage. Acceptance of the notification program was high.
 DE    Blood Transfusion/*ADVERSE EFFECTS  Child  *Communication  Disease
       Notification  Educational Status  *Heart Surgery  Human  HIV
       Infections/*TRANSMISSION  *Professional-Family Relations  Risk Factors
       MEETING ABSTRACT  JOURNAL ARTICLE

       SOURCE: National Library of Medicine.  NOTICE: This material may be
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