Document 0033
 DOCN  M9650033
 TI    The need for anonymous genetic counseling and testing.
 DT    9605
 AU    Mehlman MJ; Kodish ED; Whitehouse P; Zinn AB; Sollitto S; Berger J;
       Chiao EJ; Dosick MS; Cassidy SB; Law-Medicine Center, Case Western
       Reserve University School of; Law, Cleveland, OH, USA.
 SO    Am J Hum Genet. 1996 Feb;58(2):393-7. Unique Identifier : AIDSLINE
       MED/96152136
 AB    Concerns are mounting about the risks of genetic discrimination
       resulting from the release of predictive and presymptomatic genetic test
       results to employers, insurers, and others. The ability to keep this
       information confidential is questionable, particularly in view of the
       expansion of electronic medical databases. One solution is to afford
       individuals access to anonymous genetic counseling and testing. Probands
       would be identified only by a code that would not reveal personal
       information, and test results would be stored, retrieved, and released
       solely on the basis of this code. The experience with anonymous HIV
       testing, while not completely analogous, suggests that such an approach
       would be both practical and effective.
 DE    *Confidentiality/LEGISLATION & JURISPRUD  Ethics, Medical  *Genetic
       Counseling/LEGISLATION & JURISPRUD  *Genetic Screening/LEGISLATION &
       JURISPRUD  Hereditary Diseases/DIAGNOSIS  Human  HIV
       Infections/DIAGNOSIS  JOURNAL ARTICLE

       SOURCE: National Library of Medicine.  NOTICE: This material may be
       protected by Copyright Law (Title 17, U.S.Code).