Document 0239
 DOCN  M9550239
 TI    'We just want to be a normal family...'. Paediatric HIV/AIDS services at
       an inner-London teaching hospital.
 DT    9505
 AU    Barrett G; Victor CR; Department of Public Health, Kensington & Chelsea
       and Westminster; Commissioning Agency, London, UK.
 SO    AIDS Care. 1994;6(4):423-33. Unique Identifier : AIDSLINE MED/95134778
 AB    The nature of the HIV epidemic in the UK is changing with the increasing
       number of infected women and children. This recent onset means that
       there are few data about the specific problems of HIV in families. This
       study examines current issues in service provision to HIV infected
       children and their families at an inner-London teaching hospital. A
       sample of ten families were interviewed, from a caseload of
       approximately 100 HIV-positive children. Of the ten children, seven were
       under the age of 5 years. All the children were vertical transmissions
       and six of the mothers were from Sub-Saharan Africa. Only three of the
       ten children were identified antenatally. In terms of service provision,
       families were very satisfied with the care provided by the study
       hospital's paediatric HIV team but felt that the hospital's paediatric
       and adult HIV services were poorly co-ordinated and impractically
       located over different sites. Families did not have confidence in GP and
       community services, preferring to use hospital services which they felt
       to have more expertise in paediatric HIV. Future policy developments
       will have to confront the hospital-centred nature of paediatric HIV
       services and develop primary and community care services.
 DE    Acquired Immunodeficiency Syndrome/*EPIDEMIOLOGY/PSYCHOLOGY/
       TRANSMISSION  Adult  Child  Child Health Services/*TRENDS  Child,
       Preschool  Consumer Satisfaction  *Disease Outbreaks  Disease
       Transmission, Vertical  Female  Health Services Needs and Demand/TRENDS
       Hospitals, Teaching/TRENDS  Hospitals, Urban/TRENDS  Human  HIV
       Infections/*EPIDEMIOLOGY/PSYCHOLOGY/TRANSMISSION  Infant  Infant,
       Newborn  Male  Patient Care Team/TRENDS  Pregnancy  Urban
       Population/*STATISTICS & NUMER DATA  JOURNAL ARTICLE

       SOURCE: National Library of Medicine.  NOTICE: This material may be
       protected by Copyright Law (Title 17, U.S.Code).